Thursday, June 16, 2011

Bride of Frankenstein, Medusa or an Alien

The past couple of months I have been switching to a safer seizure medication. It has been a long process but things are going well. We decided to do a new kind of test to see if the medication is working and to see if we can get any results (and find out what is really wrong). The test is called an ambulatory EEG.

Wednesday morning Mom and I drove do South Denver (Swedish Medical Center) for my first appointment. During this the tech marks my head (with a red wax pencil), scrubs my head (with what felt like sandpaper) and then glues on electrodes. Each electrode has glue on the head and then a gaze strip dipped in glue on top of it (so basically it is a LOT of glue all over my head). I had 28 electrodes total, each connected to a long wire. The wires all went into a recording box that I had to carry with me. Sticking the electrodes on took a little over two hours. After they were all on the tech hooked my up to their computer to see if all the wires were working. It looked really cool (like a million heart beats) and then I would blink, talk, or do different things and one line would spike to make a different pattern. It all looked terribly complicated and confusing but very interesting.





So I took my fancy fanny pack and head all jazzed out and went home for 24 hours. During the time I was at home I had to keep a log of what I was doing, so they could make sense of the pattern changes for my every day activities. So I basically watched TV and slept, mainly because I didn’t want to walk around looking like an alien.


Thursday afternoon we drove BACK down to Denver to have the electrodes taken off. This only took about 30 minutes but left me with a LOT of glue in my hair. So we went to Erica’s house where she and Mom spent well over an hour ripping the glue off my head. They used conditioner, baby oil and finally nail polish remover to get the glue soft enough to remove. It was painful and I lost some hair but they were wonderful and it would have been a lot more painful if I had done it alone.


So I am slowly growing the skin back on my scalp and we get the test results back in two weeks- lots to look forward to!

1 comment:

eric said...

cool pictures. :)
is that my hat?