The past couple of months I have been switching to a safer seizure medication. It has been a long process but things are going well. We decided to do a new kind of test to see if the medication is working and to see if we can get any results (and find out what is really wrong). The test is called an ambulatory EEG.
Wednesday morning Mom and I drove do South Denver (Swedish Medical Center) for my first appointment. During this the tech marks my head (with a red wax pencil), scrubs my head (with what felt like sandpaper) and then glues on electrodes. Each electrode has glue on the head and then a gaze strip dipped in glue on top of it (so basically it is a LOT of glue all over my head). I had 28 electrodes total, each connected to a long wire. The wires all went into a recording box that I had to carry with me. Sticking the electrodes on took a little over two hours. After they were all on the tech hooked my up to their computer to see if all the wires were working. It looked really cool (like a million heart beats) and then I would blink, talk, or do different things and one line would spike to make a different pattern. It all looked terribly complicated and confusing but very interesting.
So I took my fancy fanny pack and head all jazzed out and went home for 24 hours. During the time I was at home I had to keep a log of what I was doing, so they could make sense of the pattern changes for my every day activities. So I basically watched TV and slept, mainly because I didn’t want to walk around looking like an alien.
Thursday afternoon we drove BACK down to Denver to have the electrodes taken off. This only took about 30 minutes but left me with a LOT of glue in my hair. So we went to Erica’s house where she and Mom spent well over an hour ripping the glue off my head. They used conditioner, baby oil and finally nail polish remover to get the glue soft enough to remove. It was painful and I lost some hair but they were wonderful and it would have been a lot more painful if I had done it alone.
So I am slowly growing the skin back on my scalp and we get the test results back in two weeks- lots to look forward to!
Thursday, June 16, 2011
Sunday, June 12, 2011
SAN FRANCISCO!!
We arrived in San Fran on Thursday night and went straight to the Golden Gate bridge look out point. It was so cool to see the bridge in real life (and not just in pictures). It is really big and beautiful. We were there around sunset so it was especially beautiful and lit up by the sun.
PICTURES TO COME
After we left the Golden Gate bridge we went to our hotel on the other side of San Francisco. Yes, I got to stay in a hotel. Charlotte and I both don’t really stay in hotels much so we were SO excited and felt really grown up. To add to that grown up feeling I jumped on the bed- super fun. The next morning we ate a HUGE complementary breakfast and took some with us for lunch (not exactly stealing?).
We drove into downtown San Francisco and parked the car for the day. We walked to Pier 39 and got to walk around and see the shops. If you look over the railing on the pier there are TONS of Sea Lions. They made a barking sound that you could hear blocks away. There were easily 50 all sitting on wooden planks sunbathing. There were a couple wrestling in the water and it was really cool to see. I was surprised at how big they were and how lazy they looked. I kept thinking, “These things are so mean they can kill a whale?” But it is true, so I was glad I didn’t see them mad.
Then we continued to walk down the Fisherman's Warf, getting a quick look at Ghirardelli Square, and went to catch a street car. When we got to the start spot (for streetcars) we found them CLOSED. Yes on the first time I had ever been to San Francisco the famous street cars were close. So we took a bus. The bus tried to stay on all the streetcar routes so all the tourists could still see everything.
Our first stop was Lombard Street; this is the windiest street in the US. It seriously had a turn every 10-12 feet and went all the way down a very steep hill. I ran to the bottom and got pictures. Running back up I felt like I was running stairs in a stadium (it was so steep). Then we got back on the bus and took a longer trip to Union Square. I loved driving/riding in San Francisco; every street seemed unique and exciting because they were all so steep. All the roads are on huge hills and it seriously felt like a rollercoaster, I loved it but Charlotte was a little scared (thinking the bus would plummet).
At Union Square we went to Neiman Marcus (a store that one blouse cost’s more than my car). Charlotte’s Aunt told us to go to the cafĂ© in the top because it had a great view. While there we both ordered a dessert. It was seriously the fanciest restaurant I have ever been to. They gave up complementary chicken broth with a miniature croissant- in little most miniature dishes I have eaten on since I was 5. The view was really cool, although we weren’t sitting by the window so we mostly just looked at the people (lots of fake noses and cheek bones). Charlotte felt a little uncomfortable because we looked like obvious tourists (shorts, t-shirts, tennis shoes and a backpack) and everyone else was in fancy close and suits. But I honestly loved it.
On the way out of Union Square Charlotte wanted to stop by an enormous Old Navy and look around. Then we were back on the bus going down to China Town (the largest China Town in the US). It was cool to walk around and see the Chinese architecture and see every sign in Chinese. I wish we could have stayed there longer and kept walking around (I wanted to eat some rare Chinese food but Charlotte was not to keen on that idea) but we headed back to bus and went back to Pier 39. We ate lunch at Pier 39 while we watched the street performers (who weren’t out in the morning when we were there). Then we went back to the car, stopped to get In-N-Out for Ron/Ben and I went to the airport.
So I know I shouldn’t complain about the San Francisco Airport but... I am going to. It was bar none the most confusing airport I have ever been in and I have been in quite a few. I went in, went to Terminal 1 and went through security (no problems). I walked all the way down and could not find my gate, so I went back to security to ask. They told me that there had been construction and my gate was not at Terminal 2- they just hadn’t got around to changing the signs yet. So I had to leave the airport, walk to Terminal 2 and go through security AGAIN. This time there were issues. They were making everyone go through the scanner thing (hold your arms still, don’t move) and before hand asked if we had anything in our pockets). After I stepped out they took me aside and said I hadn’t emptied my pockets, I checked and had my PAPER ticket in my back pocket so they gave me a full pat down. Then they took me to another room where they wiped my hands with a piece of tissue paper and then ran the tissue paper through a machine to make sure I did not have explosion residue on my hands. Seriously? All of this for one piece of paper? I was so frustrated when I FINALLY got to my gate.
So I had a great trip (not a great airport ending). I had to much fun with Charlotte and touring around Northern California!
PICTURES TO COME
After we left the Golden Gate bridge we went to our hotel on the other side of San Francisco. Yes, I got to stay in a hotel. Charlotte and I both don’t really stay in hotels much so we were SO excited and felt really grown up. To add to that grown up feeling I jumped on the bed- super fun. The next morning we ate a HUGE complementary breakfast and took some with us for lunch (not exactly stealing?).
We drove into downtown San Francisco and parked the car for the day. We walked to Pier 39 and got to walk around and see the shops. If you look over the railing on the pier there are TONS of Sea Lions. They made a barking sound that you could hear blocks away. There were easily 50 all sitting on wooden planks sunbathing. There were a couple wrestling in the water and it was really cool to see. I was surprised at how big they were and how lazy they looked. I kept thinking, “These things are so mean they can kill a whale?” But it is true, so I was glad I didn’t see them mad.
| At the peir with all the boats! |
| It is hard to see but there are a TON of sea lions behind me! |
Then we continued to walk down the Fisherman's Warf, getting a quick look at Ghirardelli Square, and went to catch a street car. When we got to the start spot (for streetcars) we found them CLOSED. Yes on the first time I had ever been to San Francisco the famous street cars were close. So we took a bus. The bus tried to stay on all the streetcar routes so all the tourists could still see everything.
Our first stop was Lombard Street; this is the windiest street in the US. It seriously had a turn every 10-12 feet and went all the way down a very steep hill. I ran to the bottom and got pictures. Running back up I felt like I was running stairs in a stadium (it was so steep). Then we got back on the bus and took a longer trip to Union Square. I loved driving/riding in San Francisco; every street seemed unique and exciting because they were all so steep. All the roads are on huge hills and it seriously felt like a rollercoaster, I loved it but Charlotte was a little scared (thinking the bus would plummet).
At Union Square we went to Neiman Marcus (a store that one blouse cost’s more than my car). Charlotte’s Aunt told us to go to the cafĂ© in the top because it had a great view. While there we both ordered a dessert. It was seriously the fanciest restaurant I have ever been to. They gave up complementary chicken broth with a miniature croissant- in little most miniature dishes I have eaten on since I was 5. The view was really cool, although we weren’t sitting by the window so we mostly just looked at the people (lots of fake noses and cheek bones). Charlotte felt a little uncomfortable because we looked like obvious tourists (shorts, t-shirts, tennis shoes and a backpack) and everyone else was in fancy close and suits. But I honestly loved it.
On the way out of Union Square Charlotte wanted to stop by an enormous Old Navy and look around. Then we were back on the bus going down to China Town (the largest China Town in the US). It was cool to walk around and see the Chinese architecture and see every sign in Chinese. I wish we could have stayed there longer and kept walking around (I wanted to eat some rare Chinese food but Charlotte was not to keen on that idea) but we headed back to bus and went back to Pier 39. We ate lunch at Pier 39 while we watched the street performers (who weren’t out in the morning when we were there). Then we went back to the car, stopped to get In-N-Out for Ron/Ben and I went to the airport.
| Look at the arcitecture of this building behind Charlotte. Very cool! |
| China Town- you can see hanging lanters behind us. |
| This is one of the street performers at the Fisherman's Warf. We sat and ate lunch near here and watched him- it was cool. |
| China town |
So I know I shouldn’t complain about the San Francisco Airport but... I am going to. It was bar none the most confusing airport I have ever been in and I have been in quite a few. I went in, went to Terminal 1 and went through security (no problems). I walked all the way down and could not find my gate, so I went back to security to ask. They told me that there had been construction and my gate was not at Terminal 2- they just hadn’t got around to changing the signs yet. So I had to leave the airport, walk to Terminal 2 and go through security AGAIN. This time there were issues. They were making everyone go through the scanner thing (hold your arms still, don’t move) and before hand asked if we had anything in our pockets). After I stepped out they took me aside and said I hadn’t emptied my pockets, I checked and had my PAPER ticket in my back pocket so they gave me a full pat down. Then they took me to another room where they wiped my hands with a piece of tissue paper and then ran the tissue paper through a machine to make sure I did not have explosion residue on my hands. Seriously? All of this for one piece of paper? I was so frustrated when I FINALLY got to my gate.
So I had a great trip (not a great airport ending). I had to much fun with Charlotte and touring around Northern California!
Monterey and Steak
On Thursday of my trip we left Sonora and headed down through Modesto (to pick up Charlotte’s friend Katie) and then to Monterey. Charotte and Katie lived in Monterey after high school and they had lots of cool places to show me.
We went to the Monterey Aquarium and saw some cool sea creatures. I think my favorite were the sea horses. There were sea horses that looked like leaves- they were so hard to see. It was SO weird that they looked unreal- alien-esk. We also got to see them feed the otters, which was really interesting and funny. The otters are defiantly all about showing off. I also got to touch a sting ray- which was really cool (I have liked sea rays since doing a big project on them in the 4th grade).
We left the Aquarium and went to some beaches to walk around and see the sites. I have never been to mid/northern California and so I just expected everything to be like southern CA. I touched that water and it was freezing, defiantly no surfing for me (although there were a couple people out in the water). It was just so relaxing and fun to be able to sit on the beach and relax (although if you know me you know I didn’t really relax but was kind of crazy).
We left Monterey mid afternoon and went to Katie’s Grandma’s house ( I can not really remember which town-oops) and went out to dinner with Grandma Fay and Katie’s Aunt. They took us to a bbq place and I got a steak salad (yes, I know I ordered steak, unbelievable). It was crazy because it was just cut up lettuce with a steak on top. It made me laugh but it was DELICIOUS. We left around 6:00 to go to SAN FRANCISCO.
PICTURES TO COME (I can't get the pictures off the ipod they were saved on!)
We went to the Monterey Aquarium and saw some cool sea creatures. I think my favorite were the sea horses. There were sea horses that looked like leaves- they were so hard to see. It was SO weird that they looked unreal- alien-esk. We also got to see them feed the otters, which was really interesting and funny. The otters are defiantly all about showing off. I also got to touch a sting ray- which was really cool (I have liked sea rays since doing a big project on them in the 4th grade).
We left the Aquarium and went to some beaches to walk around and see the sites. I have never been to mid/northern California and so I just expected everything to be like southern CA. I touched that water and it was freezing, defiantly no surfing for me (although there were a couple people out in the water). It was just so relaxing and fun to be able to sit on the beach and relax (although if you know me you know I didn’t really relax but was kind of crazy).
We left Monterey mid afternoon and went to Katie’s Grandma’s house ( I can not really remember which town-oops) and went out to dinner with Grandma Fay and Katie’s Aunt. They took us to a bbq place and I got a steak salad (yes, I know I ordered steak, unbelievable). It was crazy because it was just cut up lettuce with a steak on top. It made me laugh but it was DELICIOUS. We left around 6:00 to go to SAN FRANCISCO.
PICTURES TO COME (I can't get the pictures off the ipod they were saved on!)
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